At one point, approximately two years ago, I was in and out of the hospital on a bi-weekly basis with the doctors thinking it was my diabetes acting up again. I knew differently. We all know our bodies and you should always trust your gut so that’s exactly what I did. Second opinion here I come!
Upon seeking a second opinion I was informed that I had Celiac disease with a 99.8% positive test. I was told that diabetes and celiac play hand-in-hand. If you have one, you will more than likely develop the other. Of course I was happy about finally knowing what was wrong but I was still upset about having another food restricted diet to follow.
Things went well for a while but that soon came to an abrupt end when things suddenly went downhill without any notice. In the hospital, out of the hospital. Back and forth, back and forth. This was my life every second week. Again the doctors assumed that it was because of my diabetes but you know what they say about assuming… Let me tell you that the doctors totally fit the part as it wasn’t my diabetes but actually my kidneys shutting down! This is something that I was preparing for since I know that diabetes affects the kidneys but it was a complete shock to hear that I would need dialysis for the rest of my life unless I was eligible for a kidney transplant.
Despite having to be away from my wife and little one for more than a month in a different city, I’m grateful for the diagnosis as I’m eligible for a kidney and pancreas transplant. This means that I will be given a pancreas as well as a kidney, leaving me only to worry about the celiac disease. No more chronic kidney disease or type 1 diabetes. Yay!
I’m currently going through the screening process for a living* or non-living organ transplant and it has taken a lot of running to and from appointments as well as to dialysis every other day. However, to have these tests completed means that I’m one step closer to being healthy and being able to take my son sliding and to the pool to practice his swimming techniques. Things that I can not currently do with a chest catheter.
Some of the complications that I’m dealing with due to the diabetes is nerve damage, diabetic neuropathy or bleeding in the back of the eyes which is controlled with LASIK treatment. Unfortunately for me, I need to have my eyes frozen with a needle in order to undergo these treatments. I also suffer from gastro-parisis which is a fancy word for lazy stomach. My stomach has a harder time digesting food because of the nerve damage caused by the diabetes. I constantly shake due to the nerves as well as suffer from anxiety. As mentioned above, I also suffer from chronic kidney disease which causes me to have kidney stones quite often as well as having to attend dialysis which causes a lot of issues too but that’s going to have to wait until another time so I don’t bore anyone by rambling, lol. I wish I could tell people what to look out for but with the multiple different issues that I suffer from it’s too hard to pinpoint what I felt due to each separate disease.
I’m extremely grateful for the medicare system here in Canada as I know it would be even more difficult for me without some kind of financial aid. Speaking of financial aid, I have had a tremendous amount of help from the blogging community including Journeys Of The Zoo and I’m extremely thankful for the kind donations and general support I’ve received from them. It’s absolutely amazing knowing that there are still kind hearted people in the world.
Given all the challenges in Jason’s life, you might think that he’d be sad or bitter but he’s far from it. He is generous, giving and always thinking of others. I’m sure that he has his moments but they’re the exception.
Want to Help? Jason and his Family are raising money for his upcoming transplant. You can donate here.
Know Anyone That Has Had an Organ Transplant?
— Journeys of The Zoo (@zoojourneys) May 7, 2015
Jason was born in Saskatchewan and now resides in Quebec. He has two sons, a loving wife and three cats. He loves to cook and hopes to obtain a culinary degree. In his spare time he enjoys being outdoors and blogging with his wife.
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|FROM THE ARCHIVES|
|February 2015||HELLP Syndrome|
|December 2014||Shea Butter|
|November 2014||Bayo Bundles|
|October 2014||Living Organ Donor – Jen Oram|
|September 2014||4 The Love of Mommy|
|February 2014||Cathy Thinking Out Loud|
|December 2013||Bouche Baby|
|November 2013||Dreams and Colour|
|October 2013||Nolan Wilson Freelance|
|September 2013||Sun 7 Designs|
|August 2013||In My 30’s and It’s Time|
|July 2013||The Koala Bear Writer|
|June 2013||The Great Canadian Blog Bash|
|May 2013||Mama Bear Haven|
|April 2013||YYZ Bambina|
|March 2013||Ottawa Valley Fiber Arts|
|February 2013||Gone With The Family|
|January 2013||Treasures from the Ark|
|November 2012||Life After My Kids|
|September 2012||Current Works of Glass|